Hi Everyone:
Went to church services with Cathy again today, actually they
have services every Wednesday,so I do try and get there for that...Cathy has gotten
real comfortable with the Pastor,
she sometimes brings him a song
book when we enter the room....
I also noticed today that she turned to the right page of our book several times....usually she
doesn't seem to have any idea what page or song we are singing.....Afterwards we went for
pie and coffee, yum, yum!!!!
I picked lemon pie for Cathy, I
thought it would be easiest for her
to swallow,, still had a hard time....
She wanted seconds, but we went
outside for a nice long walk instead.... When we got close to
where Barb S. works, she pointed
and mumbled something... She also pointed toward the highway 54....Wonder if she was thinking
about home????She had a new T
shirt on, and was she ever proud
of that. pictures of her family and
grandkids....Great idea !!!!Anyway
when it was time for me to go, she
went and got the book for me to
write in...What a gal....The nurses
\in her unit said she is pleasant
and smiling most of the time.....
I'll see her tomorrow,, Cathy's
family need not worry about her
abit, she is well taken care of..
and loved by all..... Jean
Our Families Journey Caring for a Mom with FTLD-MND
It is important to know as you read this journal that this was Cathy's life post diagnosis...
To know Cathy Truly you must know that she was: a Wife, Mother of 3 boys, Grandmother of 9, Sister, Niece, Aunt, Daughter, and Friend.
Our families journey began with Cathy's diagnosis the week of Thanksgiving 2006, Cathy was 52. Her original diagnosis was Pick's Disease/FTD. Looking back her symptoms most likely began 3-5 years before diagnosis. Most of the Doctors have told us that from onset of symptoms to death... the average timeframe is 4-7 years. (sigh) In the end her brain autopsy showed Frontotemporal Lobar Degeneration with Motor Neuron Disease FTLD-MND. (Basically... Frontal Lobe Dementia with Lou Gehrig's Disease)
To know Cathy Truly you must know that she was: a Wife, Mother of 3 boys, Grandmother of 9, Sister, Niece, Aunt, Daughter, and Friend.
Our families journey began with Cathy's diagnosis the week of Thanksgiving 2006, Cathy was 52. Her original diagnosis was Pick's Disease/FTD. Looking back her symptoms most likely began 3-5 years before diagnosis. Most of the Doctors have told us that from onset of symptoms to death... the average timeframe is 4-7 years. (sigh) In the end her brain autopsy showed Frontotemporal Lobar Degeneration with Motor Neuron Disease FTLD-MND. (Basically... Frontal Lobe Dementia with Lou Gehrig's Disease)
Wednesday, May 14, 2008
Monday, May 12, 2008
Note from Jean
Hi Everyone:
Just a quick note on my visit to
Cathy today... I was gone for a long week-end, so Cathy was
excited to see me!!! So that's what
I want to think,,, she hugged me, kissed me, so happy, held hands
with me all the way down to the
dining room...Yes. BINGO, and
yes we did win, sometimes we
might cheat a little, not on purpose
of course... then outside for a little
walk, it was going on 3:00 and I had to pick girls up at school, Cathy went with, we then went to
the animal shelter, and she loves
the dogs there, she especially
is partial to a small chocolate lab.
they let her hold and walk and play
with it as long as she wants,, I
think Barb S. has taken her there
as she knows where and what to
do...Good day was had by all of
us... My granddaughters, who are
11 and 10 years old, love being
with Cathy, they remember her at
our house many times....Take
care and will write again after
next weeks golf cart trail ride for
Cathy.... Love Jean
Just a quick note on my visit to
Cathy today... I was gone for a long week-end, so Cathy was
excited to see me!!! So that's what
I want to think,,, she hugged me, kissed me, so happy, held hands
with me all the way down to the
dining room...Yes. BINGO, and
yes we did win, sometimes we
might cheat a little, not on purpose
of course... then outside for a little
walk, it was going on 3:00 and I had to pick girls up at school, Cathy went with, we then went to
the animal shelter, and she loves
the dogs there, she especially
is partial to a small chocolate lab.
they let her hold and walk and play
with it as long as she wants,, I
think Barb S. has taken her there
as she knows where and what to
do...Good day was had by all of
us... My granddaughters, who are
11 and 10 years old, love being
with Cathy, they remember her at
our house many times....Take
care and will write again after
next weeks golf cart trail ride for
Cathy.... Love Jean
Thursday, May 8, 2008
Note From Barb
Hi everyone, Just got home from Pine View. When I went over there, Jean and your mom were just coming outside. Perfect timing because Jean had to leave so Cathy and I went for a walk over to the animal shelter. She went right for a cute chocolate lab, she also enjoyed the baby kittens. Then she wanted to go for a ride so we went in the country. Coming back she spotted Dave working, rolled down her window and said his name so he came over and talked to her. On Tues. we enjoyed sing along and birthday cake and ice cream for May birthdays. Then we went for a walk outside it was so nice. She got pretty winded though. That evening I checked in on her again because it was stormy and last week Jean said she was alittle uneasy with storm warnings. She was fine and ready for bed. Sunday Gayle brought her out to Hatfield and she came right over with big hugs for Pete and I. Then Gayle and I went for a walk around the campground with her. Hope the weather is nice Sunday so she can come out to Hatfield with Ryan and family and your dad. Love to you all. Barb
Monday, May 5, 2008
Note from Jean
Just a short note to all,, Visited
Cathy on Friday,took her to the
church services there..She seems
to enjoy listening to people singing.
After the half hour service we go
down to the main dining room for
coffee.... Cathy is choking more and more often now, must be very
careful what and how much to let
her have... She smiles at everyone and is so happy looking... I think she enjoys going
out for a dairy queen also, I sure
do!!! Missed playing bingo today
Monday, but will make up for it
tomorrow.....On May 19th, I have
Cathy signed up to go for a golf
cart ride on the beautiful Foundation trail with the Lions Club... John will be her driver, they
do this twice a year for folks who
otherwise wouldn't get out to do
this... I know she will enjoy the ride. Am signing off for now.
Love Jean
Cathy on Friday,took her to the
church services there..She seems
to enjoy listening to people singing.
After the half hour service we go
down to the main dining room for
coffee.... Cathy is choking more and more often now, must be very
careful what and how much to let
her have... She smiles at everyone and is so happy looking... I think she enjoys going
out for a dairy queen also, I sure
do!!! Missed playing bingo today
Monday, but will make up for it
tomorrow.....On May 19th, I have
Cathy signed up to go for a golf
cart ride on the beautiful Foundation trail with the Lions Club... John will be her driver, they
do this twice a year for folks who
otherwise wouldn't get out to do
this... I know she will enjoy the ride. Am signing off for now.
Love Jean
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