Our Families Journey Caring for a Mom with FTLD-MND

It is important to know as you read this journal that this was Cathy's life post diagnosis...

To know Cathy Truly you must know that she was: a Wife, Mother of 3 boys, Grandmother of 9, Sister, Niece, Aunt, Daughter, and Friend.

Our families journey began with Cathy's diagnosis the week of Thanksgiving 2006, Cathy was 52. Her original diagnosis was Pick's Disease/FTD. Looking back her symptoms most likely began 3-5 years before diagnosis. Most of the Doctors have told us that from onset of symptoms to death... the average timeframe is 4-7 years. (sigh) In the end her brain autopsy showed Frontotemporal Lobar Degeneration with Motor Neuron Disease FTLD-MND. (Basically... Frontal Lobe Dementia with Lou Gehrig's Disease)

Saturday, July 7, 2007

Ticks

Cathy is now obsessed with Ticks. She is constantly itching her neck & behind her ear. I have looked at this "so called" ticks and I only see what looks like mosquito bites. In an attempt to show her I took a few close up pictures of the spots. I then showed her trying to explain she does not have ticks... but she still disagreed & continues to itch and scratch at these spots. She was putting alcohol directly on them. At one point she would just hold the alcohol over the spot and pour... then it would also run all over the floor. Since Aunt Charlene visited she has also started putting Dawn Dish soap on them. Charlene made the comment that she knew of someone who used to put Dawn on a cottonball & then cover the tick to force it to crawl out. (another one of those situations when we didn't realize Cathy was listening to us talk & she picked up on what we were saying) Since then Cathy will walk into the kitchen put some on her finger & spread it on her itching spots. Her skin is now dry, flaky, & reddened. I have been trying to explain to her why this won't help... but once again she doesn't listen. She doesn't argue either. She just looks at you & then walks back into the kitchen and does it again. We have all said, "Cathy, please stop doing that." But it hasn't worked. She keeps sneaking in and putting it on throughout the day. So today Rhonda & I thought we would be sneaky. We bought some handsoap that looked similar to Dawn & put it in the Dawn bottle. Hoping this wouldn't dry her skin out as much... Once again... not a very good idea! She was then washing dishes with it & we were afraid we would all get sick. UFFDA! Anyone have any good ideas??

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