Our Families Journey Caring for a Mom with FTLD-MND

It is important to know as you read this journal that this was Cathy's life post diagnosis...

To know Cathy Truly you must know that she was: a Wife, Mother of 3 boys, Grandmother of 9, Sister, Niece, Aunt, Daughter, and Friend.

Our families journey began with Cathy's diagnosis the week of Thanksgiving 2006, Cathy was 52. Her original diagnosis was Pick's Disease/FTD. Looking back her symptoms most likely began 3-5 years before diagnosis. Most of the Doctors have told us that from onset of symptoms to death... the average timeframe is 4-7 years. (sigh) In the end her brain autopsy showed Frontotemporal Lobar Degeneration with Motor Neuron Disease FTLD-MND. (Basically... Frontal Lobe Dementia with Lou Gehrig's Disease)

Saturday, September 15, 2007

Friends

Cathy is Blessed with many good friends!
I wanted to take a few moments to Thank them for all they have done this past year.

Barb - You have been her friend since grade school. She was so excited to move back to Wisconsin & be close to you again. Thank You for your continued support in everyway!

Rhonda - An Iowa neighbor who is now a lifelong family friend. Thank You for your patience & care with Cathy! You have spent time with her, taken her out for ice cream, taken her shopping, cleaned her home, watched movies (over & over) with her at home. Thank You!

Jean - Your life is so busy, yet you still make time for a friend! Thank You for taking her out for coffee, keeping her company while Gayle is out of town, & keeping her plants alive while she is in Iowa with us! You are Truly a Wonderful friend!
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