Our Families Journey Caring for a Mom with FTLD-MND

It is important to know as you read this journal that this was Cathy's life post diagnosis...

To know Cathy Truly you must know that she was: a Wife, Mother of 3 boys, Grandmother of 9, Sister, Niece, Aunt, Daughter, and Friend.

Our families journey began with Cathy's diagnosis the week of Thanksgiving 2006, Cathy was 52. Her original diagnosis was Pick's Disease/FTD. Looking back her symptoms most likely began 3-5 years before diagnosis. Most of the Doctors have told us that from onset of symptoms to death... the average timeframe is 4-7 years. (sigh) In the end her brain autopsy showed Frontotemporal Lobar Degeneration with Motor Neuron Disease FTLD-MND. (Basically... Frontal Lobe Dementia with Lou Gehrig's Disease)

Monday, February 4, 2008

Pictures

I wanted to share some pictures that Jean took this week. They are from Thursday - Saturday of this week. Unfortunately my computer & I are having a disagreement... it won't let me open the Kodak picture CD... so I scanned the picture sheet for now... which I know is hard to view, but I wanted you to all see Cathy's Smile!!! Once I get things figured out I will update this post & put on clearer pictures!



Pictures include Cathy, Jean , Barb S. (in green) , Brad, & I.



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