Our Families Journey Caring for a Mom with FTLD-MND

It is important to know as you read this journal that this was Cathy's life post diagnosis...

To know Cathy Truly you must know that she was: a Wife, Mother of 3 boys, Grandmother of 9, Sister, Niece, Aunt, Daughter, and Friend.

Our families journey began with Cathy's diagnosis the week of Thanksgiving 2006, Cathy was 52. Her original diagnosis was Pick's Disease/FTD. Looking back her symptoms most likely began 3-5 years before diagnosis. Most of the Doctors have told us that from onset of symptoms to death... the average timeframe is 4-7 years. (sigh) In the end her brain autopsy showed Frontotemporal Lobar Degeneration with Motor Neuron Disease FTLD-MND. (Basically... Frontal Lobe Dementia with Lou Gehrig's Disease)

Friday, May 8, 2009

God's Gift of Time

we all need a time to grieve-
quiet time for reflection
to sift through memories
and come to grips
with what has happened.

we all need a time for tears,
not for the one who is now
at peace in heaven,
but for ourselves as we realize
that things will never be the same.

we all need a time to just "be",
when we can open ourselves to God
and let the reassurance
of His everlasting love
start to heal our broken hearts.


~I read this today on a Hallmark sympathy card... and it struck a chord in me... it is exactly how I have been feeling. Brad & I were both feeling we were finally beginning to heal from losing Cathy and then this week my Grandmother passed away suddenly (yes, she was 91, but she was still cooking and cleaning and had traveled up to visit us 4 times in the past year!! She even rode on the snowmobile with Brad this winter! At any age it is difficult losing someone you Love.)

My heart is breaking once again for our children... losing 2 Grandma's in 3 months. We lost Cathy slowly and painfully... and we were expecting it, yet we still were not ready to let her go. And we lost Grandma Gladys quickly and peacefully... yet we are still not ready to let her go. They were friends. Grandma helped with Cathy when she lived with us in Iowa. She sat with her when I needed to run an errand or go to a school event. And I Imagine Cathy greeting Grandma Gladys into the doorway to Heaven with a big hug & a smile.

1 comment:

DeeDee said...

How sad for you and your kids to lose your Grandmother ! I remembered reading your blog and you how you mentioned your Grandmother helping out with Cathy. Thanks for continuing your blog from time to time. I have wondered about you and how things have been.