Our Families Journey Caring for a Mom with FTLD-MND

It is important to know as you read this journal that this was Cathy's life post diagnosis...

To know Cathy Truly you must know that she was: a Wife, Mother of 3 boys, Grandmother of 9, Sister, Niece, Aunt, Daughter, and Friend.

Our families journey began with Cathy's diagnosis the week of Thanksgiving 2006, Cathy was 52. Her original diagnosis was Pick's Disease/FTD. Looking back her symptoms most likely began 3-5 years before diagnosis. Most of the Doctors have told us that from onset of symptoms to death... the average timeframe is 4-7 years. (sigh) In the end her brain autopsy showed Frontotemporal Lobar Degeneration with Motor Neuron Disease FTLD-MND. (Basically... Frontal Lobe Dementia with Lou Gehrig's Disease)

Thursday, February 4, 2010

One Year...

Tonight our kids gave Brad his Birthday cards & on the back of Brad's card Chase drew this:



Grandma Cathy waving to Daddy from Heaven.

I cannot find the words to fully explain the feeling that overwhelmed me when I saw it... that feeling that tugs at your heart/soul.

Tears in all of our eyes.

Tomorrow may be harder than I had thought...
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