Our Families Journey Caring for a Mom with FTLD-MND

It is important to know as you read this journal that this was Cathy's life post diagnosis...

To know Cathy Truly you must know that she was: a Wife, Mother of 3 boys, Grandmother of 9, Sister, Niece, Aunt, Daughter, and Friend.

Our families journey began with Cathy's diagnosis the week of Thanksgiving 2006, Cathy was 52. Her original diagnosis was Pick's Disease/FTD. Looking back her symptoms most likely began 3-5 years before diagnosis. Most of the Doctors have told us that from onset of symptoms to death... the average timeframe is 4-7 years. (sigh) In the end her brain autopsy showed Frontotemporal Lobar Degeneration with Motor Neuron Disease FTLD-MND. (Basically... Frontal Lobe Dementia with Lou Gehrig's Disease)

Tuesday, November 13, 2007

Cathy's Room

Just wanted to share her room here in Iowa with you. Brad painted the one wall in a cranberry color... hoping to bring the Wisconsin feeling here for her... He vows to never paint anything but white again!!! LOL I have put a few photos of all her 8 Grandchildren in the room. Plus I framed a picture I took of their front yard in Wisconsin last year & she helped me hang it up this week.





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