Our Families Journey Caring for a Mom with FTLD-MND
It is important to know as you read this journal that this was Cathy's life post diagnosis...
To know Cathy Truly you must know that she was: a Wife, Mother of 3 boys, Grandmother of 9, Sister, Niece, Aunt, Daughter, and Friend.
Our families journey began with Cathy's diagnosis the week of Thanksgiving 2006, Cathy was 52. Her original diagnosis was Pick's Disease/FTD. Looking back her symptoms most likely began 3-5 years before diagnosis. Most of the Doctors have told us that from onset of symptoms to death... the average timeframe is 4-7 years. (sigh) In the end her brain autopsy showed Frontotemporal Lobar Degeneration with Motor Neuron Disease FTLD-MND. (Basically... Frontal Lobe Dementia with Lou Gehrig's Disease)
To know Cathy Truly you must know that she was: a Wife, Mother of 3 boys, Grandmother of 9, Sister, Niece, Aunt, Daughter, and Friend.
Our families journey began with Cathy's diagnosis the week of Thanksgiving 2006, Cathy was 52. Her original diagnosis was Pick's Disease/FTD. Looking back her symptoms most likely began 3-5 years before diagnosis. Most of the Doctors have told us that from onset of symptoms to death... the average timeframe is 4-7 years. (sigh) In the end her brain autopsy showed Frontotemporal Lobar Degeneration with Motor Neuron Disease FTLD-MND. (Basically... Frontal Lobe Dementia with Lou Gehrig's Disease)
Friday, November 2, 2007
On the Road Again
Well... this morning when I got up Cathy was packing our van. She had her suitcase, movies, our dog food, & boots for the kids packed! I figured if we didn't head North today... it would make for a long day. So... off we went. Over the river & through the woods to Grandmother's house we go!
I wasn't in any hurry today... just wanted to make it before sunset. We stopped a few times to stretch & get snacks. Once we got to Winona we took a detour to a scenic overlook. I was worried how she would handle it... curvy road & high cliffs... but she did really well! She even walked to the overlook with us!! After we crossed the Mississippi we stopped at an Apple orchard... this was Chase's request. He remembered stopping here last year & we made it just in time because tomorrow is their last day open for the season. They didn't have any pumpkins left, but they had plenty of Honeycrisp apples (our favorite!), they also had toy tractors for the kids to pedal on, & the owner gave Mia a dog biscuit to give to his Dog.
We made it up here in 5 1/2 hours... not too bad of timing with 2 kids, a dog, & Grandma who wants to stop at every rest area. I got a bag of cheddar chex mix & Cathy had it gone in about 30 minutes along with a candy apple sucker, 3 musketeers (her favorite), and almost all of the bubble tape! I bought a few more snacks the next stop but hid them in my door...
When we got here Gayle was going bow hunting so Chase got to go sit with Grandpa in the newest deer stand. Cathy has been busy around the house since we got here. Rearranging things, doing laundry, & feeding the dogs apples. Hoping for a nice relaxing weekend...
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