Our Families Journey Caring for a Mom with FTLD-MND

It is important to know as you read this journal that this was Cathy's life post diagnosis...

To know Cathy Truly you must know that she was: a Wife, Mother of 3 boys, Grandmother of 9, Sister, Niece, Aunt, Daughter, and Friend.

Our families journey began with Cathy's diagnosis the week of Thanksgiving 2006, Cathy was 52. Her original diagnosis was Pick's Disease/FTD. Looking back her symptoms most likely began 3-5 years before diagnosis. Most of the Doctors have told us that from onset of symptoms to death... the average timeframe is 4-7 years. (sigh) In the end her brain autopsy showed Frontotemporal Lobar Degeneration with Motor Neuron Disease FTLD-MND. (Basically... Frontal Lobe Dementia with Lou Gehrig's Disease)

Monday, March 3, 2008

Note From Jean 3/3

Note From Jean -
Have gone to see Cathy everyday
since I've been back (Saturday) Today (Monday) John and I both stopped for just a minute, was she excited to see John, lots of kisses, then she looked at all that facial hair and started laughing so hard!!!! John said maybe he should shave it off!!!! After school today I asked Whitney and Taylor if they would like to see where Cathy lives, and they did, she hugged, kissed them so much, I didn't think she remembered them that well,but they were excited for Cathy to see her so happy. first time ever she acted like we shouldn't leave..we stayed a good
half hour or so..A very good day for her.. I feel so good when I see that she's happy... Hugs and kisses to all of you....Jean
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