Our Families Journey Caring for a Mom with FTLD-MND

It is important to know as you read this journal that this was Cathy's life post diagnosis...

To know Cathy Truly you must know that she was: a Wife, Mother of 3 boys, Grandmother of 9, Sister, Niece, Aunt, Daughter, and Friend.

Our families journey began with Cathy's diagnosis the week of Thanksgiving 2006, Cathy was 52. Her original diagnosis was Pick's Disease/FTD. Looking back her symptoms most likely began 3-5 years before diagnosis. Most of the Doctors have told us that from onset of symptoms to death... the average timeframe is 4-7 years. (sigh) In the end her brain autopsy showed Frontotemporal Lobar Degeneration with Motor Neuron Disease FTLD-MND. (Basically... Frontal Lobe Dementia with Lou Gehrig's Disease)

Monday, May 5, 2008

Note from Jean

Just a short note to all,, Visited
Cathy on Friday,took her to the
church services there..She seems
to enjoy listening to people singing.
After the half hour service we go
down to the main dining room for
coffee.... Cathy is choking more and more often now, must be very
careful what and how much to let
her have... She smiles at everyone and is so happy looking... I think she enjoys going
out for a dairy queen also, I sure
do!!! Missed playing bingo today
Monday, but will make up for it
tomorrow.....On May 19th, I have
Cathy signed up to go for a golf
cart ride on the beautiful Foundation trail with the Lions Club... John will be her driver, they
do this twice a year for folks who
otherwise wouldn't get out to do
this... I know she will enjoy the ride. Am signing off for now.
Love Jean
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