Our Families Journey Caring for a Mom with FTLD-MND

It is important to know as you read this journal that this was Cathy's life post diagnosis...

To know Cathy Truly you must know that she was: a Wife, Mother of 3 boys, Grandmother of 9, Sister, Niece, Aunt, Daughter, and Friend.

Our families journey began with Cathy's diagnosis the week of Thanksgiving 2006, Cathy was 52. Her original diagnosis was Pick's Disease/FTD. Looking back her symptoms most likely began 3-5 years before diagnosis. Most of the Doctors have told us that from onset of symptoms to death... the average timeframe is 4-7 years. (sigh) In the end her brain autopsy showed Frontotemporal Lobar Degeneration with Motor Neuron Disease FTLD-MND. (Basically... Frontal Lobe Dementia with Lou Gehrig's Disease)

Saturday, October 27, 2007

Excited to be home a few days

Rhonda called and said they made it to Wisconsin ok. She said Cathy talked all the way to Winona... in complete sentences!!! This shows her excitement to go home! She did however quiet down and get nervous on the winding roads the last 45 minutes of the trip. Once they pulled in the long driveway she unbuckled and got very excited. Yelling for Misty. Rhonda also said she has been busy since they got there... picking up, taking out trash, etc... She also mentioned that Gayle has the house looking very good... he has even got down and scrubbed the floors! :)

Thanks Rhonda!!
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