Our Families Journey Caring for a Mom with FTLD-MND

It is important to know as you read this journal that this was Cathy's life post diagnosis...

To know Cathy Truly you must know that she was: a Wife, Mother of 3 boys, Grandmother of 9, Sister, Niece, Aunt, Daughter, and Friend.

Our families journey began with Cathy's diagnosis the week of Thanksgiving 2006, Cathy was 52. Her original diagnosis was Pick's Disease/FTD. Looking back her symptoms most likely began 3-5 years before diagnosis. Most of the Doctors have told us that from onset of symptoms to death... the average timeframe is 4-7 years. (sigh) In the end her brain autopsy showed Frontotemporal Lobar Degeneration with Motor Neuron Disease FTLD-MND. (Basically... Frontal Lobe Dementia with Lou Gehrig's Disease)

Thursday, December 27, 2007

Christmas Eve

Reflecting back on Christmas Eve Brad & I realized that it was the only evening while we were up in Wisconsin that Cathy did not get mad at Gayle (more on that later). It is hard to say how much she truly understood. But she did seem to be happy & kept wanting to pass out presents before it was time. Once she started opening all of her presents she smiled & laughed. At one point she opened a birdhouse from Gayle... she then went to put her shoes on, she was going to take it right outside & hang it up! She was like a child opening her presents, wanting to play with what she opened right away.



We played our usual White Elephant game & she opened her first present but then handed it to Gayle & started picking up the wrapping paper. She ran around picking up paper, boxes, & trash from opened presents & then went directly outside to burn everything. It was great to see her helping instead of going directly to bed.

Thanks to Barb for helping cook all the goodies... especially the bacon wrapped smokies... Yum! And Thanks to Everyone who helped Cathy enjoy her Christmas in Wisconsin! We had lots of visitors from Saturday - Tuesday & lots of Christmas goodies brought over from friends!!

Since we got home Cathy has been very proud of her gifts. She especially Loves a Sweatshirt Toby & Tracy gave her that has all 8 of her Grandkids on it. She will point at her sweatshirt & laugh and smile.

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