Our Families Journey Caring for a Mom with FTLD-MND

It is important to know as you read this journal that this was Cathy's life post diagnosis...

To know Cathy Truly you must know that she was: a Wife, Mother of 3 boys, Grandmother of 9, Sister, Niece, Aunt, Daughter, and Friend.

Our families journey began with Cathy's diagnosis the week of Thanksgiving 2006, Cathy was 52. Her original diagnosis was Pick's Disease/FTD. Looking back her symptoms most likely began 3-5 years before diagnosis. Most of the Doctors have told us that from onset of symptoms to death... the average timeframe is 4-7 years. (sigh) In the end her brain autopsy showed Frontotemporal Lobar Degeneration with Motor Neuron Disease FTLD-MND. (Basically... Frontal Lobe Dementia with Lou Gehrig's Disease)

Sunday, June 8, 2008

Flooding in Iowa


Just wanted to share this photo of our old driveway. This is the driveway that we shared with Cathy & Gayle in Iowa. (Our houses were next door to each other) We used to joke that if the river ever got high enough we might have to use their canoe to get out the driveway... luckily for us it never did when we lived there. But today the river crested higher than in the floods of 1993! Cathy would have gotten a kick out of this! She loved to watch the weather!! Luckily you can tell by the picture that the houses are above the flooding... hopefully their basements are dry!!??!! (I am SO GLAD our house sold so quickly... it would be hard to sell a house with no driveway!)
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