Our Families Journey Caring for a Mom with FTLD-MND

It is important to know as you read this journal that this was Cathy's life post diagnosis...

To know Cathy Truly you must know that she was: a Wife, Mother of 3 boys, Grandmother of 9, Sister, Niece, Aunt, Daughter, and Friend.

Our families journey began with Cathy's diagnosis the week of Thanksgiving 2006, Cathy was 52. Her original diagnosis was Pick's Disease/FTD. Looking back her symptoms most likely began 3-5 years before diagnosis. Most of the Doctors have told us that from onset of symptoms to death... the average timeframe is 4-7 years. (sigh) In the end her brain autopsy showed Frontotemporal Lobar Degeneration with Motor Neuron Disease FTLD-MND. (Basically... Frontal Lobe Dementia with Lou Gehrig's Disease)

Tuesday, June 3, 2008

Note from Jean

Just me again, checking in with
everyone.. Today there was a
birthday party at the Care Center
for all of June Birthdays, I had a
hard time explaining to Cathy that
it wasn't her birthday and we had
to sit some place other than the
head table, which was reserved
for the birthday people.. but finally
succeeded.She was happy and
smiley the whole time I was with
her...Tomorrow, I think Brad will
be in town, and Thursday morning
John and I are making a quick trip
to Texas... Barb S. will be over the
flu bug by then and will stop daily
and check on Cathy.. Ruth
Sandbergen will also go visit ,,,,
So I hope she won't get too
lonesome???? Had a nice visit
with Toby last night, can't wait to
see him and family in a couple
weeks... That's all for now....Jean
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