Our Families Journey Caring for a Mom with FTLD-MND

It is important to know as you read this journal that this was Cathy's life post diagnosis...

To know Cathy Truly you must know that she was: a Wife, Mother of 3 boys, Grandmother of 9, Sister, Niece, Aunt, Daughter, and Friend.

Our families journey began with Cathy's diagnosis the week of Thanksgiving 2006, Cathy was 52. Her original diagnosis was Pick's Disease/FTD. Looking back her symptoms most likely began 3-5 years before diagnosis. Most of the Doctors have told us that from onset of symptoms to death... the average timeframe is 4-7 years. (sigh) In the end her brain autopsy showed Frontotemporal Lobar Degeneration with Motor Neuron Disease FTLD-MND. (Basically... Frontal Lobe Dementia with Lou Gehrig's Disease)

Monday, February 2, 2009

Family visit

We had a good weekend with Missouri Family! Gayle's step Mom Rosalie, Sister Lisa, & Niece Sis were here. Cathy had smiles for Lisa Friday night when we visited & for Lisa and Sis Saturday. Rosalie went with Gayle on Sunday and took her a musical card... that she carried around Sunday & Monday! She LOVES those musical cards.

It was nice to have them here visiting, have a few laughs singing Karaoke on the wii!! (what happens in Wisconsin, stays in Wisconsin!) It was Brad's birthday this weekend & it was also good to have them as a distraction to cheer him up! And it was Wonderful to have a good cook in Cathy's kitchen again!!!
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