Sending a Prayer request out to all our family & friends...
I am praying for:
Comfort in her suffering,
Peace for her fears,
& that God will surround her with his Loving Presence.
Safe travels for all of her family & friends.
Our Families Journey Caring for a Mom with FTLD-MND
It is important to know as you read this journal that this was Cathy's life post diagnosis...
To know Cathy Truly you must know that she was: a Wife, Mother of 3 boys, Grandmother of 9, Sister, Niece, Aunt, Daughter, and Friend.
Our families journey began with Cathy's diagnosis the week of Thanksgiving 2006, Cathy was 52. Her original diagnosis was Pick's Disease/FTD. Looking back her symptoms most likely began 3-5 years before diagnosis. Most of the Doctors have told us that from onset of symptoms to death... the average timeframe is 4-7 years. (sigh) In the end her brain autopsy showed Frontotemporal Lobar Degeneration with Motor Neuron Disease FTLD-MND. (Basically... Frontal Lobe Dementia with Lou Gehrig's Disease)
To know Cathy Truly you must know that she was: a Wife, Mother of 3 boys, Grandmother of 9, Sister, Niece, Aunt, Daughter, and Friend.
Our families journey began with Cathy's diagnosis the week of Thanksgiving 2006, Cathy was 52. Her original diagnosis was Pick's Disease/FTD. Looking back her symptoms most likely began 3-5 years before diagnosis. Most of the Doctors have told us that from onset of symptoms to death... the average timeframe is 4-7 years. (sigh) In the end her brain autopsy showed Frontotemporal Lobar Degeneration with Motor Neuron Disease FTLD-MND. (Basically... Frontal Lobe Dementia with Lou Gehrig's Disease)
3 comments:
Praying for Cathy...comfort, peace, mercy and of course LOVE...praying that all of you will be able to spend precious time with her, but also not forget to take care of yourselves. I am always around if you need to talk...give me a call.
Your sis in Christ
Nichelle
Love you!
XOXO
Praying for Cathy and all your family during this time. If you need anything or want to talk feel free to call whenever!
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