Our Families Journey Caring for a Mom with FTLD-MND

It is important to know as you read this journal that this was Cathy's life post diagnosis...

To know Cathy Truly you must know that she was: a Wife, Mother of 3 boys, Grandmother of 9, Sister, Niece, Aunt, Daughter, and Friend.

Our families journey began with Cathy's diagnosis the week of Thanksgiving 2006, Cathy was 52. Her original diagnosis was Pick's Disease/FTD. Looking back her symptoms most likely began 3-5 years before diagnosis. Most of the Doctors have told us that from onset of symptoms to death... the average timeframe is 4-7 years. (sigh) In the end her brain autopsy showed Frontotemporal Lobar Degeneration with Motor Neuron Disease FTLD-MND. (Basically... Frontal Lobe Dementia with Lou Gehrig's Disease)

Tuesday, February 17, 2009

The seed is Hope, the Flower is Joy

Late Entry from Saturday, February 7th, 09

Tracy & I stopped by the Flower shop in town to check on "Grandma" ribbons for the flowers. And while we were there we asked if they had any seed packets... in February. The lady smiled & said, "It never hurts to ask", and then she returned with the display from the previous spring! So we bought up all the flower packets... at a great price, Thanks Falls Florist!... made some labels to place on them saying, "Plant these seeds with Love in memory of Cathy". Cathy LOVED the outdoors including gardening & flowers. We wanted to Celebrate Cathy's life and we felt like sharing seeds with her family & friends was one way to do that. Sharing Cathy's Love of Flowers and planting hope for the future that will bring joy & a smile when the seeds begin to grow & bloom.


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1 comment:

Nichelle said...

What a wonderful and honoring gift to remember Cathy by...I wish I would have thought of something special like that...still praying for all of you...let me know if you need anything....Nichelle

February 18, 2009 8:48 AM

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