Our Families Journey Caring for a Mom with FTLD-MND

It is important to know as you read this journal that this was Cathy's life post diagnosis...

To know Cathy Truly you must know that she was: a Wife, Mother of 3 boys, Grandmother of 9, Sister, Niece, Aunt, Daughter, and Friend.

Our families journey began with Cathy's diagnosis the week of Thanksgiving 2006, Cathy was 52. Her original diagnosis was Pick's Disease/FTD. Looking back her symptoms most likely began 3-5 years before diagnosis. Most of the Doctors have told us that from onset of symptoms to death... the average timeframe is 4-7 years. (sigh) In the end her brain autopsy showed Frontotemporal Lobar Degeneration with Motor Neuron Disease FTLD-MND. (Basically... Frontal Lobe Dementia with Lou Gehrig's Disease)

Wednesday, October 15, 2008

FTD YouTube Video

I found this short YouTube Video tonight on FTD. It is very helpful to explain the basics from a caregiver's perspective. If you have a chance please check it out.




Sorry... you may need to pause my music player in the lower right hand column so you can listen to the video. If the link does not show up here is the cut & paste version:

http://www.youtube.com/watch?v=dP4PoUkVy0U&feature=user
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