Our Families Journey Caring for a Mom with FTLD-MND

It is important to know as you read this journal that this was Cathy's life post diagnosis...

To know Cathy Truly you must know that she was: a Wife, Mother of 3 boys, Grandmother of 9, Sister, Niece, Aunt, Daughter, and Friend.

Our families journey began with Cathy's diagnosis the week of Thanksgiving 2006, Cathy was 52. Her original diagnosis was Pick's Disease/FTD. Looking back her symptoms most likely began 3-5 years before diagnosis. Most of the Doctors have told us that from onset of symptoms to death... the average timeframe is 4-7 years. (sigh) In the end her brain autopsy showed Frontotemporal Lobar Degeneration with Motor Neuron Disease FTLD-MND. (Basically... Frontal Lobe Dementia with Lou Gehrig's Disease)

Sunday, October 5, 2008

Inspiring Quotes

I used to think Quotes were overrated... but now I seem to find comfort & strength in them. Here are a few I really Love.

* "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain!"
(Thanks Jodie! Friend)

* "We cannot change the cards we are dealt, just how we play the hand."
-Randy Pausch
(Thanks Brenda! Friend & classmate of ours from Iowa)

* "You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face... Do the thing you think you cannot do."
Eleanor Roosevelt
(Kathy... Wonderful Wife & Caregiver on the ftdsupportforum)

* "The best and most beautiful things in the world cannot be seen, nor touched ... but are felt in the heart." - Helen Keller
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